From resistance to resilience the concept of palliative care for children and young people emotional safety in adverse events a sudden unexpected death in infancy sudden serious illness adolescent with cancer where to next the transition to early adulthood young adult with duchenne muscular dystrophy. Palliative care for children and young people with life limiting or life threatening conditions is an active and total approach to care from the point of diagnosis or recognition throughout the childs life and death it embraces physical emotional social and spiritual elements and focuses on enhancement of quality of life for the child young . Childrens palliative care is an evolving specialty and as such our knowledge base cannot remain static this book constantly challenges the reader to critically analyze their own practices and beliefs within an evidence based framework and as such makes a valuable contribution to the growing body of knowledge on this important subject. Palliative care for children and young people with life limiting conditions focuses on improving the quality of life for the child young person and support for the family and includes the management of distressing symptoms provision of care through death and bereavement. Community childrens nursing services are well placed to provide palliative care for children and young people living with life limiting conditions the provision of home support can make a real difference to the quality of life for these families yet families report that services are fragmented and difficult to access
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